Hi @eth ... I think we posted at the same time, so I missed your message until after I posted. So .. hello and thanks. 🌹
Morning @Zoe7 thanks to you too for your message, much appreciated. Hi @Maggie and also @outlander .
@CheerBear yes you are correct ... hubby would not be able to take up dotting. His Parkinsons Disease and therefore shakiness would prevent him being able to do it to his personal level of perfection. Then his frustration and temper would mean he would totally 'lose it'. So it just would not be worth even suggesting anything like that. More's the pity. He used to do a bit of painting about 15 years ago, and was quite good at it. But he has never looked like wanting to take it up again. I am hoping I can get a start on my diamond painting today. But I want to see if I can call the nursing home where my Dad is having a week's respite. Its hard to pick the right time to get someone to answer.
Slow start to the day here. Early start yesterday for an appointment in another town an hour from here, plus a bit of a chest cold has meant hubby is in bed trying to sleep. I took him breakfast in bed, in between his 3 stages of medications, then closed the curtains and left him to rest this morning. The neuro apt yesterday was uneventful. He increased his Parkinsons meds, and said he was not interested in treating him for the autoimmune encephalitis. Spoke about it a bit though, and said that they are constantly discovering new side effects from the immunotherapy treatment hubby had for his Stage IV melanoma. Many of them are neurological he said, and he treats some in his Sydney practice. But everyones symptoms are a little different and its really hard to narrow down, let alone treat. But he is happy with how his Parkinsons Disease treatment is going. Yep great ... the rest will probably fester along without any intervention until such time as it reaches crisis point and an emergency hospitalisation. Meanwhile we both suffer. Very frustrating, and along with everything else which is happening in my life ... I am truly fed up with everything, about had enough to be honest.
Sherry
Can you get a second opinion to help hubby Hon? You both cannot keep going like this as it is destroying any quality of life you both could have. It seems irresponsible of this specialist to disregard hubby's symptoms so please seek out alterntive treatment. I know that is probably going to mean you having to look further away from home but if you can get some treatment to help it will ease your life at home a little.
