Our stories
Sorry @Mazarita and @Appleblossom I'm onto the next task now. Take good care both of you - think of you way more often than I get here. 
s to @Shaz51 @Zoe7 and @Emelia too.
So good to hear from you Mazy @Mazarita ,
I think of you often & it's good to know your out there doing things that you enjoy.
I hope C is feeling better & you've got your groove back 😉 I still admire your
ability to use public transport, not that there's any out here . . . Oh, by the way,
I'm not in that place you mentioned, it's like 10 hours away from me, I'm not that
far in & a little further up the country - but when I consider the vastness out here,
. . . your pretty darn close 🙂 I'm fully vaccinated now, the only reaction I got was
a few aches after the second jab. But maybe when they open up the borders, I
might try to make my way down to that areas local river, it looks like a nice spot.
Lots of love to you
Hi @eth @Appleblossom @Exoplanet @Zoe7 and all,
It's been two weeks since I last posted here at the forum, but feels like a month or more. I often marvel at this aspect of being on the forum - the way my sense of time here seems to be different than in the real world.
I am about day 13 into a bout of shingles. Anyone who knows about shingles will know about the awful nerve pain that goes with it. It's been a shocker of a time with that and still now, though less than at its worst. My biggest fear is the continuation of the nerve pain once rashes fully clear up. Apparently the nerve pain, the worst of it for me, can continue for months and months after the rashes are gone.
It's knocked me for six with the rhythm of ndis activities that I had built steadily over some months, up to five days a week with activities or appointments (3 of these being 5 hour sessions with support workers). But sleep has been so hard with the shingles pain that my clock is all out of whack again. This makes my carefully developed routine of weekly activities just not work.
I had a first support session yesterday for about 10 days (had to reduce it to 2 hours instead of 5 due to lack of sleep night before). All we did was go grocery shopping but I was totally wrecked, destabilised and distraught all evening, crying from pain and probably just trying too hard with support again too soon.
Bugger it all, I feel sh*t. I've only had 2 hours sleep overnight and sent a message to support worker for today to reduce our time from 5 hours to 2 hours. Already warned her I may end up cancelling altogether. Need to go back to bed. Sleep more important for healing than planned activities.
The bright light at the moment is my psychologist/hypnotherapist. Whatever sanity I have left in me from this shingles experience is significantly due to the regular hypnoses we have been doing since April. Yesterday I listened again to recordings of two of them. Almost always I am listening to at least one a day, ranging from 20 minutes to 50 minutes each.
But at the intensity of pain I've been in and the way it's been wearing down my resilience day after day, there is truly nothing like rstrong prescription pain relief. I would not be sitting here writing without having taking some in the middle of last night.
Hope you don't mind me tagging you into this account of my days right now. I do not know when I will be back to reply to any tags arising, but sending love and well wishes and hopes for good times.
That is truly horrible for you @Mazarita and so debilitating 
Do not worry about being here or replies - you are number one right now so keep doing what you need to look after yourself and I hope this pain ends for you soon. Hugs and hugs sweet Maz
Hi also @Exoplanet and @eth Always lovely to see you both here
Oh No @Mazarita Sounds really horrid dose of shingles. Get your rest and listen to your body.
Lovely to get a tag and know you are still tuning in to forums from time to time.
Gentle Hugs
Good to see you all @Exoplanet @eth @Zoe7
I had a couple days off line.
Good to get a break.
Apple
